5. Nihal Bitla – Indian Child Advocate
Nihal Bitla from India became a public figure after appearing in media to raise awareness about progeria. Known for his bright personality and love of art, he became the face of the condition in India and worked with the Progeria Research Foundation to encourage better understanding and support. His story reached millions when Bollywood actor Amitabh Bachchan highlighted him after playing a character with a progeria-like condition in the film Paa. Nihal passed away in 2016 at the age of 15, leaving behind a legacy of awareness and compassion.